His mother said just one seizure could kill him Facebook / Keep Billy Alive: bit.ly/2qoaGei
An 11-year-old boy who was dying from severe epilepsy has not had any seizures for 300 days since being prescribed a medical marijuana product.
Billy Caldwell, whose intractable epilepsy means he cannot get help through medication or diet, began treatment with cannabis oil in the US, where medical marijuana is legal, in 2016.
His prescription was transferred to his local GP, Brendan O’Hare, in Northern Ireland, and Billy became the first person to receive a prescription for medical marijuana in the UK.
The medicine, which contains a compound found in cannabis plants called CBD, does not contain any synthetic chemicals. The company, Billy’s Bud, was named after Billy in July.
His mother, Charlotte Caldwell, said Billy used to suffer up to 100 seizures per day, has now not had a single seizure for 300 days. Ms Caldwell said the cannabis oil has also improved his autism, for example, better eye contact and engagement with books and toys.
“To me, that’s incredible, because one seizure can kill him,” she told ITV News after 90 days of no seizures.
The ultimate herbal remedy: Can cannabis improve autism?
Campaigners say CBD can also help with diseases including cancer and Crohn’s disease. It is legal in the UK and the Medicines and Healthcare Products Regulation Agency said CBD has a “restoring, correcting or modifying” effect on “physiological functions”.
He also takes a compound called tetrahydrocannabinolic acid (THCA), which is illegal in the UK due to its links with the psychoactive effects of cannabis.
Earlier this year an independent committee set up “Sponsor a Bud” programme, allowing low income families from Ireland and the UK to obtain CBD via a Bud grant.
The family is also holding a Billy’s Bud festival on 9 September in Castlederg, County Tyrone, to celebrate the support they received for their “Keep Billy Alive” campaign.
“Following extensive treatment with CBD oil, Billy is now more than 300 days seizure free,” Ms Caldwell told Donegal Now.
“To celebrate the phenomenal change for the better in Billy's health, we have decided to hold a small celebration in recognition of all those people that have helped us “Keep Billy Alive”.”
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Hello my son is 8 years old and had is first seizure at 2 years he was diagnosed with generalized epilepsy at 5 years old has been on medication since until doctor got him off and on he broke out on a seizure lasting almost 10 minutes he was put back on medication and the meds even increased ever since were back to his moody ness, tantrums, waking up every morning struggling and at night when asleep his body is constantly twitching mostly from his upper body, he had another big seizure and were still at it with all these moods. we tried different meds nothing was really working. I never stopped battling it, I’m open and supportive when looking at alternative and procedures. I saw someone comment on a website. Her daughter had seizure and she used a herbal medicine for her daughter seizure and she was seizure free. I’m glad that it was possible. I was ready to try anything that we help my son, i had a conversation with the Dr . I decided try the herbal medicine, I purchased the medicine. my son started taking the medicine. I was shocked to see my son improve, he stop having seizures. his more active and no more seizure. I’m so happy to see my son seizure free. Do as much google research as you can and do not give up on trying. If there is improvement continue, if there is no improvement stop and try something else Everyone is different. thank God my son is seizure free. you can email him on dr.lewisamenico@yahoo.com
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